Tuesday, September 24, 2019

Donate Life


So I get a call from Life Line of Ohio first thing and suddenly all my troubles are pointless. 
I was asked to be the presenter of Rose's to donor families as their loved ones names are called. What an honor. 
Then all my other crap means nothing. To me, one person made a selfless decision to become a donor and here I am!
The entire world as become a business. People that care for others do it for money. I have not worked in 7 years and made more of an impact on people's lives than if I was being paid for it.

Never have I complained in my life or ever been in trouble with the law until now. 
This issue is not just a personal one or a heart issue, its damage to my brain. I have this for the rest if my life.

Thanks to Lifeline of Ohio for being there for me.





Monday, September 23, 2019



So along with everything else the LVAD shirts are making serious money for charities.  
Thanks to everyone that has made a difference to patients families that needed a break. 

Great seeing Don Tiberi make a difference in raising funds to get more driving simulators.  Very inpiring.

Looking forward to working with Darlene from NBC4 on how 3 donate life ambassador friend became friends. 
Also looking forward to a new project that hopefully will air soon.

Monday

So I was in Dublin for an appointment at 10.15am then back to cardio rehab at 1pm.
I am tired but I am blessed to be here and must fight to see tomorrow. 

Project 8

Now I have to raise money for the foundation and to find a place for my family.



Then I have to live up to my person reputation. 

Sunday, September 22, 2019

Cancer free

With everything going on I tend to forget the real reasons for being here. 
The glory of getting through such torturous illnesses make the petty ignorance of others look ridiculous. 
I wish none of what I've been through on anyone but if only they knew the pain, anguish and anxiety then I think minds would change. But would they?
I have come to believe that i think i am here for a reason and not here to just go through life with just a job to pay the bills. 
Why do some people not struggle. 


Friday, September 20, 2019

Happy Friday

After a rough week, being harrassed by the powers that be, a sickness that hopefully has settled down, going from 2 incomes to one, some very tough family decisions one little boy made me smile. My little buddy Tyler. He is waiting patiently for a liver and he is as strong as an ox. 
It's funny really after being bullied by two law enforcement officers I wonder how they would react to what's going on to me personally. 
I have lost a lot of appreciation for many people this week, especially after being setup so that I fell into a trap. As for my own morals, all I can say is what an idiot. 
No compassion, it's just business and a pay check. Take the pledge means follow through of what you knows right. If it means having to start again then take the consequences and stop blaming others. 
I am sick of being sick. I never asked for any of this sickness and especially the injuries that have left me permanently scarred forever.
Now when you complain about someone or a business remember that doesn't mean the employee is actually being reprimanded. 
Tyler buddy, I luv ya and thank you for keeping me smiling. 


letter from Tyler with heart sticker. ❤


Monday, September 16, 2019

Friday, September 13, 2019

Better

Today I feel great. Off my virus medication as all my cmv tests are negative.  
I have energy and I am looking forward to feeling normal again. 
Hopefully sending some photos to my donor family because they have never responded to me. All I want to do is say thank you.
Happy Fridag and if you have any worries today put them in your back pocket for later. Had enough of stress. If anything will kill me stress will.

Always complain

Something I've learnt is that dont leave things because you dont want to rock the boat or upset someone. 
The mind is a complicated tool for us humans and we are here for only a while so why let other people ruin your existence.  
For years I havent been myself. Yes I have always smiled and had a great outlook but deep down it's been extremely tough. Medications affect people in different ways and I know I should have spoken up. So I'm telling you. If you're in hospital and arent happy with your care or the staff dont not complain. Dont be scared like I was and dont be fooled. 
I am blessed to be here but i am scarred  because of what happened to me in hospital. 
Never feel alone. 


Tuesday, September 10, 2019

Todays appointment

At my appointment and noticed that they have candy. Left to right. Gum, marshmallow, chip sticks and they thing that makes you gag to throw everything back up. I'd rather just get a mr man sticker 🙂 At my appointment and noticed that they have candy. Left to right. Gum, marshmallow, chip sticks and they thing that makes you gag to throw everything back up. I'd rather just get a mr man sticker 🙂 And I just noticed alcohol wipes. Good news is that I dont have to take my meds for the virus anymore which means I will not vomit everyday and have fatigue anymore. Cant wait to get these meds out my system. Great news.
And I just noticed alcohol wipes.


Good news is that I dont have to take my meds for the virus anymore which means I will not vomit everyday and have fatigue anymore. Cant wait to get these meds out my system. Great news.

Hopefully goodbye Prevymis .

Wednesday, September 4, 2019

Looking good

I finally feel good. Still need a med adjustment but the best I've ever felt. Ready to hit the road and take the inside bus around the nation.