Website

Dont forget to check out the rest of my growing website. 

Merch coming soon.

Right heart cath

7.15am appointment 9.25am recovery room.

Right heart cath. 3 heart samples and numbers look similar to 6 months ago, so looks good. I'll know more on Friday with the biopsy results.

Couldn't sleep last night, probably only slept a few hours.

I'll be glad to get home and have a cuppa tea!

Have a safe and warm Wednesday

Looks worse than it is!

Snow

4ft of snow so far.

Snapchat

Baby arrival

Back at the labor unit at OSU main campus to welcome a little baby boy. But he never arrived so we'll have to wait a little longer. 

Gave me time to blast my UK house music out on the motorway. This selfie makes me look like I have a coconut head.

Website.

So I have got my website half done but plenty more to go. 

Cant wait to get on the road in 2020 and tell my story good and bad. I am not allowing anything to stop me anymore.

Bring it on. Music, stories and inspiration.

www.heartofmark.com

Patient rights

www.hhs.gov

You never know you may need them one day. Trust me.

Angels

I have so many guardian angels. How can I ever complain because I am so blessed.

Check up

So I have decided today that I just need to go to OSU for appointments. I have even put healing hearts aside because I feel very let down by the lack of patient care. There 8s not one person on this planet that has not in one way or another sinned. How big or small, not one.

I can not be subject to judgemental looks or comments when going to the Ross heart hospital. This has been the most controversial thing that has ever happened to me. At a time when i am supposed to be focused on living i fall very easily into deep depression. I have many times thought of ending it all because i can not handle anything.

My memory is terrible, not because of age but things have just been erased and it frightens me.

My son needs me but does he really?

He has matured so quickly and grown up because of watching me fight to live. He has also seen the troubled side and the sinner side.

My donor didnt donated their heart for me to throw it away but they allowed me to still make my own decisions. 

My wife would probably fall a part but I feel nothing but a burden to her now.

Sometimes I feel more lost than ever and that's what scares me about death, whether I will feel this way for ever.

I have chronic kidney disease, I have brain issues, so many other things and I'm tired. Mentally and physically. 

I wish I had the answers and I wish I didn't always feel so low.

I can feel so angry 2 hours ago and write stuff then not remember even saying , thinking, or writing anything. I guess I'll just have to wait and see what happens.

Jimmy Carr

One of my favorite comedians is Jimmy Carr and there he was, so I had to look into his eyes. Google Jimmy Carr and you'll understand the likeness.

If you get offended by offensive humor l, swearing and British humor then move on...lol

Down in the dumps

Feeling under the weather today. Spent about 4 hours in the cold weather on Sunday collecting toys 4 tots. So I think with a combination of other things and this I'm just groggy.

It helped a little wearing my monkey head!

This was only a small portion and it's not over for a week or so.