Friday, August 28, 2020

August ends

So I am cancer free for 3 years now. Had a scare a while back but all clear.
My heart is perfect is absolutely perfect.
Kidneys are stable.
Back into the gym tomorrow and start training again.
Now this weeks appointment is to see whether I need to get a shunt in the brain. 
It was recognized that for many years now the pressure has bee  building. Along with lack of oxygen, a stroke and seizures I shouldn't really be here. I made irrational decisions with terrible consequences,  loss of memory to the point where I didn't know what's real and not real. Vertigo issues and anger.
I had a lumbar puncture but before the procedure I took a test and failed, done a similar test after and passed. Shows that the pressure is building. One doctor told me he suggests do the surgery as it may take me to a point where I cant walk. There are many factors that are making this tough. It's been tough after the transplant.  For the last 8 years it's been so terrifyingly scary and now this. 
Theres only so much a person can  take. Is this the end or is this another part where I have to fight again. 
I am doing as much as I can in life to a point just in case this is it. I never know anymore.


So until my next appointment on the 2nd September,  be safe,  be careful and be lucky. 
Mark.✌🏼

If you like uk house music, check out my current mix. Click on the link.

Ok so if you dont already know, in my younger years I was a dj. I still have the passion but would rather do it privately than publically although one of my .icing buddies in the eighties was John Digweed, now worth $45M, yeah thanks mate.
So copy and paste this link and tell me what you think. I cant post it as a video because of all the copyright text I'd have to write.
So here's where I store it. Enjoy. It's not perfect but I'm happy! #djmix #remix #tiktok
#tictokmusic #djgig #ukhouse
#hearttransplant #hubbardgrille #haipoke #rooh #columbusohio #cancersurvivor #cancersucks #livelife #theresalwaystime #music #livelifelove #lincolnsocial
#wexnermedicalcenter #clevelandclinic #osurosshearthospital #samashcolumbus

https://mega.nz/file/nghUAAhR#t6HTpbA6Db3Fwjc4p6Y-jG1oqKsbT3k68Lmi59KrKlg







Tuesday, August 11, 2020

August already!

What the heck happened to the summer. Covid 19 certainly took its toll on everyone. I got quarantined over and over again. Put on weight, got sick, lost weight, gained it. Got better and then sick again. 
Right now I have vertigo, waiting to meet with a hernia specialist which was caused by my amount of chest cracks and to top that, get ready!
Over the past years I have been suffering with brain issues. Irrational decision's, regrettable actions, anger and major memory loss. This loss has suddenly got worse and after a neurological test which I failed I had a lumbar puncture. After 30cc of spine fluid were drained I suddenly passed the test with absolutely no problem.  Turns out I have pressure on my brain. So now a shunt is in order. If I dont have this I can quickly deteriorate and even to the point where I won't be able to walk. 
This has taken me by suprise and is scaring me like crazy. 
I openly tell you all I thought about an alternative and it was a very low point. 
I lost my dad at 19 and Joshua right now is nearly 15 and I cant do that to him. But if this shunt goes wrong then it will be a disaster. 
Biopsy on the 18th of August. 
So that's where I've been.


Tuesday, April 14, 2020

YNOTT collaborates with Heartofmark.com




Tyler is 1 month out of his liver transplant. Cant wait to see him in a few months.

Had an awesome online meeting with some amazing leaders all around the country. 
Talked about collaborating with YNOTT foundation which is really exciting because with all the bad things that happened in the last few years, it's a breath of fresh air to think about my future with Healing Hearts of Central Ohio which is going to be great attending meetings and recruiting to members. Knowing everything I went through although saved my life my whole presence on this Earth changed. I became a different man, not for the good either. Medications made me sick, angry, depressed. 6 years with oxygen deprived times finally affected my brain. Sometimes the will to live caught up with me and was very real. A new heart solved one issue but then you trade one problem for another.
I know that we are all different and I know by discussions, only probably 1 or 2 doctors knew of my behavior change.
That's behind me now and I am working on some amazing things. 
So that's like the 4th Monday now behind my front door and although I cant wait to get back to it, I wont venture out until I am 100% safe. 

Saturday, April 11, 2020

Quick updates in photos.


Spring has returned but still have the covid 19 withus.


Now go shopping at the pick up isle. Not going to get it after 4 weeks in quarantine 

Thursday, March 5, 2020

A day out




And then I break my toe. Least of the worlds worries .

Makes you think. I knew someone that loved sea turtles but I never looked at it like this. And there is even a floating plastic island now. 
When this planet dies it will be us, mankind that done it.

Wednesday, February 26, 2020

Health

So in the last week or so I have gained weight rapidly and I believe its fluid. So my transplant team wants me to come in for my appointment a week earlier. Hoping it's because I got my appetite back and all I need is to eat healthier and workout.